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Wall of Heroes & The Book Of the Faces Of RSD-CRPS
 The Wall of Heroes Has moved to The Book Of The Faces Of RSD-CRPS ™To view the Book Just Click on the Big Book and there you can meet and read about The Heroes of RSD-CRPS If you wish to add your story, photo,Or Your Video's Please Send them to The Book Of the Faces of RSD-CRPS KellyB@RSDCRPSLIFESAVERS.ORGCarrieB@RSDCRPSLIFESAVERS.ORGColleenW@RSDCRPSLIFESAVERS.ORG  We like to think of our self's, Not as suffers of RSD-CRPS But Survivors! To live with the types of pain's that we have from RSD-CRPS, Everyday, 24/7 365 day's and night's, We our all Heroes  Note: Photos are not needed, But to put the faces to RSD-CRPS This would help to put the many faces of RSD-CRPS Also anyone under the age of 18 we will need a release from your Mom or Dad, to use your story and photo's, Sorry  If you would like to be a partand need a release, Please feel free to Make a copyfrom here, or you can Please email us.At ColleenW@RSDCRPSLIFESAVERS.ORG
Phone # (269)965-8544) Thank you and hope to seeand hear from you soon!
A Typical RSD-CRPS Experience Nightmare! A Mom of a 10 year old, My 10 year old daughter was just diagnosed with RSD in her wrist and hand. She injured it on May 5th, was first hit with a floor hockey stick at school and then twisted it at gymnastics after which she couldn't move it. It took 9 weeks to get the RSD diagnosis, she was x-rayed numerous times, they treated her as having a Salter Harris type I fracture which is a fracture across the growth plate and often isn't detected on x-ray, it showed a widening of her growth plate of her long bone. They put on a cast but unlike most kids in casts she couldn't move her fingers, she had severe pain (that was getting worse), and numbness they thought that she was having swelling under the cast so they cut it off after a week and a half and just put her in a splint. All of her x-rays had appeared normal with no fractures seen, the more recent x-rays were showing bone degeneration (osteopenia) which is indicative of the early stages of RSD. She was in tears every time we tried to mobilize her wrist and fingers. She had numbness to mid forearm. We were sent to an adult Orthopedic surgeon who didn't even assess her very well and just said she needed physio and sent us to one, he was suggesting RSD then but had no real reason why. At the physio, she was very concerned that he hadn't ensured there were no other injuries, this wasn't typical for a child of her age to develop this. She suggested we go see a pediatric specialist at Children Hospital, after about 2 weeks back and forth of trying to figure out which doctor would see her we got an appointment. We got the diagnosis from the pediatric orthopedic surgeon July 6th, the doctor was quite harsh and rough with her and just moved her hand and fingers quite roughly and made her cry a lot, he got mad at her for not moving them telling her that she could when she said she couldn't. I didn't think that was quite the right approach to use on a 10 year old. He didn't suggest physio, he said she just needed to start moving it, I left that appointment quite upset. I did my own research online and got in touch with a couple gals on here through Facebook that gave me some tips. I created my own physio routine for her based on videos I saw on here and through my own experience as a nurse. We went back to see the Doctor at Children Hospital a week and a half later and by then I had her moving her hand and fingers and was able to squeeze the Doctors hand, he was very impressed with her improvement in the short time, he was even pleasant towards her and didn't seem at all like the rude guy we had experienced the week before. My daughter now has almost full mobility back, her wrist is still a little stiff as that was completely immobilized for 9 weeks. She still has numbness but that is starting to slowly get better. She was also starting to show signs of skin discoloration and sweating of that hand and those symptoms are still there. She still holds her hand stiff at times and I need to keep reminding her to relax it and keep it mobile. As for the pain, she's working through it and it seems to be getting better slowly, she has some days that are worse than others. I just recently signed her up to gymnastics again, she feels she is ready and I'm hoping it will be a positive way for her to keep exercising.
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