Poster Child of Year

 

 

Coming Soon 2010 Poster Person!!!! 

 

          

 

2009 RSD-CRPS Poster Child Ali!  

We hope that you will take the time to read about her and also see what she has been up to,


                Ali's Journey               

        
                                                    



flower Ali also started Kids in Pain! flower

Kids in Pain 

 Kids in Pain was founded by 14 year old, Alison Day who suffers from Complex Regional Pain Syndrome, Athritis, Fibromyalgia  and Hypermobility Syndrome in the hope that sharing her experiences with others would provide the support needed to deal with the challenges faced on a daily basis.

You can also visit Ali

where she started

Kids in Pain


 Facebook

Group 

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A Poem 

 Written by a young teen with

CRPS
Why Want You Understand? 

How can it be that just one day
Could change my life forever
Steadily growing, burning fire
Within me, leaving never
A life so full of friends
A family who'd unite
I hope they'd always be there
To help me win this fight
What started out so positive
Slowly fell apart
School and friends just disappeared
My family broke my heart
My pain is real and constant
Although others aren't so sure
Why should I have to prove to them
This monster has no cure
I sometimes wish I had the power
To let others take my place
To become me for just one day
And see the frustration on their face
Frustration that they cannot share
In normal daily life
Why wind and rain and sunshine
Cuts through them like a knife
I wish my life was just like theirs
Without the need for help
Independence regained, my life restored
Without the need for help
Chronic pain is "secret"
A condition hid away
From those who chose not to look
One I choose not to display      
My pain is real, forever here
A reminder of the cost
Of fate and events conspiring
Of my independence lost
Just because I don't look ill
Because I've come this far
Remember that it hurts to not
Ask me how things are
A simple word can mean so much
More than you'll ever know
To know you care, you're always there
Though I've still so far to go.

Written by 14 year old, Alison Day

flower(Founder of Kids in Pain)flower

 Kids

Kids in Pain